After being allowed afternoon and night leave for the last few days we were discharged properly today. Very exciting, we are all looking forward to a sleep in tomorrow and not having to be anywhere.
There is still a long way to go yet and we will need to go to the hospital as outpatients on Mondays, Wednesdays and Friday's, until +100 days, but will enjoy sleeping under the same roof and not juggling hospital living with home living (not sure if that makes sense, some people will know what we mean!).
Adam is obviously doing well or we would not be getting out, and his blood cells are slowly getting into gear. However, the high fluid intake is still a challenge (to keep his kidneys happy), as well as the doctors balancing the graft vs host disease to try and get rid of any left over leukaemia cells. He is doing very well with his eating and thankfully his temperature is ok. This is the constant variable hanging over our heads. So prayers for his temp to stay normal to keep us out of hospital would be appreciated.
We also moved into our new temporary home here in Coogee beach yesterday. It is very nice and has enough space for all of us. It is a bit noisy, as we are very close to the beach front (& Coogee night life!), but this will have its advantages too! Plenty of places for Darren and I to go partying late at night........ if we had the inclination or the energy!!!!
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