Day + 35 and still ok

Another couple of days down and things staying stable.
Adam had another outpatient visit today, which was a bit quicker as he only needed one thing IV. They didn't take total blood cell counts today, as they were all pretty good the other day. This is the first time in a while that we have no counts to put on our chart. However, we are not complaining as there is no point measuring something if it is not needed.
They did measure his kidney function, which was improved, so he is doing a good job with his fluid intake. He is pretty tired and weiry today, but he will have days where he is more washed out. Getting a little more sleep over the weekend will help. I guess this is one of the most notable differences with his wellbeing, this time, compared to past treatments, is that he is so fatigued. He can only walk very short distances and even sitting up on a normal chair for very long is hard work. This is persisting and fairly unchanged over the last few weeks. I am sure it is normal, if you are a transplant patient, and will not go on forever, but is quite a change for him.
Yesterday we did manage to get out and about down to look at Le Perouse on the north side of Botany Bay. It was very nice to have a look around and there were relatively few people around and quite cloudy, with intermittent rain, so quite a good spot to take a boy still in isolation and needing to avoid the sun!
Matthew, Alexander and I investigated some more of the local baths this afternoon, which was interesting. They definately like modifying the sea landscape on the Sydney coast to maximise swimming potential as the beaches spread is fairly limited.
We are looking forward to two days of freedom over the weekend, as we do not need to visit the hospital until Adams outpatient appointment on Monday. We are praying for a stable weekend and no temperatures!!!!