We have been busy being a family in Sydney doing zoo visits and getting to the beach in between visits to the hospital and other exercising activities.
This week was Australia Day and besides the huge crowds, noise and a 20th wedding anniversary we have had a good un-eventful time with Adam. We have had to spend some extra time at the hospital this week due to the short week and waiting for medications to be made by pharmacy. His blood results continue to be good and on track.
We did receive some disappointing news early in the week regarding some testing done before we came to Sydney. We had already learned, just before starting the transplant process in Sydney, that these tests done during the pretreatment process needed to be repeated as they had not been strictly accurate. We could not wait for the tests to be done at the time as they take some weeks. As we have discovered this week these tests came back positive where as they were negative before and positive is not actually the result you want! Thats science for you! What this means ultimately we do not know, but it does mean we need all the prayers to continue for the current balancing of the graft vs host reaction to do its job eliminating all the remaining leukaemia so that cure is still a possibility.
All this has no immediate effect on Adam's treatment except the doctors are trying even more to optimise the graft vs host reaction. So Adam has continued to be quite well and bright and slowly on the mend physically.
We did send Matthew home today to start school on Tuesday and are making plans for Darren and Alexander to return home soon.
Thanks for your continued prayers they are really vital to Adam's recovery and to us as a family.
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