Wow, day +26

Well things are certainly a bit busier with the kids here but good at the same time.

Adam continued to get some day leave on the 1st and 2nd of January. However, soon after he came back into hospital on sunday night (2nd) his temperature went up to 38.1. Around here, that means there could be an infection and blood cultures are taken straight away (ie they take blood straight from both lumens of his CVC line and send them to the lab to test if there are any bugs in his system) and iv anitbiotics organised, and you will be in hospital, full time, for at least the next 48 hours!!! Bye, bye day leave. Hence, sunday night we were a bit concerned and worried about what this meant, but at the same time Adam said he felt fine, so we let time tell us what was happening.
We need not have worried. Adam's temp stayed a bit high overnight, but he felt ok. When the doctors checked him out in the morning he had a more significant skin rash, indicating a graft vs host reaction. Relatively mild, but enough (also considering the temp) to treat it. As we actually want to have some graft vs host to get some graft vs leukaemia, this is all ok. Better that it happen now than having to come back into hospital once discharged.
Today there are still no positive blood cultures (ie no infection), so again, gearing up to look at more day or night leave and discharge some time soonish.
Thanks for everyones continued thoughts and prayers. We hope you are enjoying the holiday season. Yesterday a few of us managed to get into Sydney for a look around, so we are also trying to make the most of these unusual circumstances. We walked across the Harbour Bridge, the cheap way, around The Rocks, Circular Quay (some of us resisted Gelatisimo!), the Opera House and through some of the botanic gardens to look at the bats. Finished with a look at the sales and back to Randwick hospital for dinner on the balcony, felt funny actually!
Blessings to you and yours!